The National Organization for Rare Disorders (NORD) invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions.
In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act.
National Organization for Rare Disorders
We make every effort to ensure the accuracy of this information. However, you should always call ahead to confirm dates, times, location, and other information.