Calendar of Events

Edit Module

Patient Advocacy & Orphan Drug Workshop

Date/Time

Oct 5, 2018
09:00 AM until 03:00 PM

Description

The National Organization for Rare Disorders (NORD) invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions.

In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act. 

Cost

Free

Location

View map The Centennial Hotel
96 Pleasant Street
Concord, NH

Additional Information

Sponsor

National Organization for Rare Disorders

Contact name

Kristen Angell

Contact email

kangell@rarediseases.org

We make every effort to ensure the accuracy of this information. However, you should always call ahead to confirm dates, times, location, and other information.

Edit your event

Noticed a typo or mistake in an event you submitted to our online calendar? Click here to visit the My Account page. Once you log in you'll be able to click on the "My Events" tab and edit your event.

Edit ModuleShow Tags
Edit ModuleShow Tags