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Patient Advocacy & Orphan Drug Workshop


Oct 5, 2018
09:00 AM until 03:00 PM


The National Organization for Rare Disorders (NORD) invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions.

In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act. 




View map The Centennial Hotel
96 Pleasant Street
Concord, NH

Additional Information


National Organization for Rare Disorders

Contact name

Kristen Angell

Contact email

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